Banner for Monday Morning in Washington, DC


Volume 08 Issue 12 March 24, 2008

Welcome to Monday Morning in Washington, D.C., published weekly by The Arc of the United States. We will bring to you news of interest to self advocates and their families, volunteers, professionals, and supporters of the disability movement. Please send any comments to mmwdc@thearc.org. You are welcome to reproduce and distribute items from Monday Morning in Washington, D.C., but please credit Monday Morning in Washington, D.C. (The Arc of the United States, 2007).

The Arc of the United States advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities. Together with our network of members and affiliated chapters, we improve systems of supports and services; connect families; inspire communities; and influence public policy.

[NOTE: Having trouble reading this newsletter? Read it online.] [Past Issues]

IN THIS ISSUE:

[nectac-enotes] NECTAC eNotes - March 20, 2008
New Report - Pathways from Brain Research to Policy Source: National Summit on America's Children

A new report entitled Pathways from Brain Research to Policy provides highlights and important policy implications from the National Summit on America's Children, hosted by Speaker Nancy Pelosi in May 2007. The summit convened scientists from across the nation to share current research findings on brain development of children with Congress. The report is available at http://www.speaker.gov/pdf/CS3108.pdf

[nectac-enotes] NECTAC Web Updates - March 20, 2008

What's new at www.nectac.org!

The following new resources are now available on the NECTAC Web site:

Always Available

The topic pages - http://www.nectac.org/topics/ on our Web site, including TA event resources such as recorded presentations and meeting handouts, are continually maintained by our topic specialists and are available to all. Our publications - http://www.nectac.org/pubs/pubs.asp can all be downloaded. Subscription to our weekly eNotes - http://www.nectac.org/enotes/enotes.asp compilation is open to all.

Grant Notice - Special Education Research Training Grants

Source: Institute for Education Sciences - March 20, 2008

The Institute for Education Sciences (IES) has released a funding announcement for the National Center for Special Education Research (NCSER) FY 2009 research training grant competition: Special Education Research Training Grants (84.324B). The application deadline is October 2, 2008. For complete information go to http://ies.ed.gov/ncser/funding/ and scan down the page.

Grant Notices - Training and Information for Parents of Children With Disabilities

Source: U.S. Department of Education, Office of Special Education and Rehabilitative Services

The U.S. Department of Education's Office of Special Education and Rehabilitative Services (OSERS) has published an invitation for applications for the following two competitions for Fiscal Year 2008:

For complete information see the Federal Register notice at http://www.ed.gov/legislation/FedRegister/announcements/2008-1/031908c.html

THE DIRECT SUPPORT WORRKFORCE CRISIS: CAN UNIONS HELP RESOLVE THIS?

A Policy Paper from the Center on Human Policy 
by Steven J. Taylor, Ph.D.
February, 2008

Center on Human Policy
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
http://thechp.syr.edu  
http://disabilitystudies.syr.edu 

http://disabilitystudies.syr.edu/resources/DSWorkforceCrisis.aspx

The National Council on Disability (NCD) released Youth with Disabilities in the Foster Care System: Barriers to Success and Proposed Policy Solutions

The report focuses on the unique challenges older youth with disabilities face as they negotiate the foster care system.  See the report at:http://www.ncd.gov/newsroom/publications/2008/FosterCareSystem_Report.html

The U.S. Department of Education's ED Pubs (Education Publications) web site has undergone an extensive redesign

The redesign is intended to improve the process of ordering publications.  See http://www.edpubs.ed.gov

A new High School/High Tech (HS/HT) Program Guide,

produced by ODEP and the National Collaborative on Workforce and Disability, reflects effective practices nationwide. The guide includes information on lessons learned as HS/HT has evolved from a locally-administered to a state-administered national program model based upon the Guidepost to Success. It also includes information and materials used by HS/HT programs throughout the United States. A PDF version of the Guide can be found at http://www.dol.gov/odep/documents/a6906418_b620_4d70_bcba_52ddc3ef35a9.pdf ; a Word version can be found at http://www.dol.gov/odep/pubs/publicat.htm#pubs

"The Collapse of the National Teen Job Market and the Case for an Immediate Youth Jobs Creation Program" 

Nationally, aggregate labor market conditions in the US have weakened over the past six months. This weakening labor market is not news to America's teens, whose average employment rate declined in 2007 to a new record low for the post-World War II period, additionally, teens have failed to capture any substantive share of the net new job growth across the nation since 2003. This report from researchers at Northeastern University is available on the National Youth Employment Coalition's website at: http://www.nyec.org/content/documents/February_Report_on_a_Job_Creation_Program_for_Teens.pdf

Eyes on Bullying . . . What Can You Do?

A Toolkit to Prevent Bullying In Children's Lives offers a variety of tools to help parents and other caregivers understand bullying in a new way, reexamine their knowledge and beliefs about bullying, and shape the beliefs and behaviors of the children in their care. The toolkit, created at Education Development Center, is designed especially for parents and other caregivers of preschool- and school-age children and adolescents to use in child care programs, after-school programs, and camps. Topics include (1) the issue of bullying; (2) why bullying can sometimes be difficult to see; (3) the concepts of bully, victim, and bystander; (4) recommendations and strategies for addressing bullying when it occurs; (5) a strategic approach to creating an environment where everyone takes responsibility for preventing bullying; and (6) resources and references on bullying prevention. The toolkit is available at
http://www.eyesonbullying.org/pdfs/toolkit.pdf. All the content from the toolkit and additional information, materials, and resources are available from the Eyes on Bullying Web site at http://www.eyesonbullying.org.

Critical Services for Our Children: Integrating Mental and Oral Health into Primary Care

presents a summary of a discussion among grantmakers and health services researchers about improving the children's health care system by better integrating oral and mental health services into primary care. The issue brief is based on a Grantmakers in Health Issue Dialogue held on April 17, 2007, that focused on strategies for reducing fragmentation of services and explored opportunities for health funders. An overview of the issue, possible solutions, a conclusion, and references are provided. Topics include challenges to an integrated children's health system and examples of how health funders are addressing the problems. The issue brief is available at
http://www.gih.org/usr_doc/Issue_Brief_30.pdf. An executive summary is also available at http://www.gih.org/usr_doc/Executive_Summary_Issue_Brief_30.pdf.

The National Center for Children in Poverty (NCCP) has published regional profiles that highlight early childhood policy and demographic data for the 10 regions defined by the U.S. Department of Health and Human Services.

The profiles show what states are doing in comparison to neighboring states, and supplement NCCP's state and national profiles. A companion User Guide explains the policies that appear in these profiles. For complete information go to http://www.nccp.org/projects/improvingtheodds_stateprofiles.html

REFERENCE POINTS:
Opportunities for Youth

LEMELSON-MIT INVENTEAMS
Lemelson-MIT InvenTeams Grants foster inventiveness among high school students. InvenTeams comprised of high school students, teachers, and mentors collaboratively identify a problem that they want to solve, research the problem, and develop a prototype invention as an in-class or extracurricular project. Grants of up to $10,000 support each team's efforts. InvenTeams are encouraged to work with community partners-specifically, the potential beneficiaries of their invention. Application deadline: April 25, 2008.
http://web.mit.edu/inventeams/

GLORIA BARRON PRIZE FOR YOUNG HEROES
The Gloria Barron Prize for Young Heroes honors outstanding young leaders who have made a significant positive difference to people and our planet. Their leadership and courage make them true heroes and inspirations to us all. Each year, the Barron Prize selects 10 winners nationwide. Half of the winners have focused on helping their communities and fellow beings; half have focused on protecting the health and sustainability of the environment. Barron Prize winners each receive $2,000 to be applied to their higher education or to their service project. Nomination deadline: April 30, 2008. http://www.barronprize.org/

GRANTS FOR K-12 ENVIRONMENTAL PROJECTS FROM THE CAPTAIN PLANET FOUNDATION
The Captain Planet Foundation provides funding for projects that: promote understanding of environmental issues, focus on hands-on involvement, involve children and young adults ages 6-18 (elementary through high school), promote interaction and cooperation, help young people develop planning and problem-solving skills, and include adult supervision. Grant amount: $250-$2,500. Application deadline: March 31, 2008. http://www.captainplanetfdn.org/grants.html

STATE FARM ACCEPTING APPLICATIONS FOR SERVICE-LEARNING YOUTH ADVISORY BOARD MEMBERS.                                            State Farm invites applications from young adults between the ages of 17 and 20 to serve as associate board members on its youth advisory board. Youth board members will be responsible for identifying pressing issues that have direct impact on communities, overseeing the site selections and grantmaking process, providing technical assistance to the site grantees, and assisting with communications and outreach. Eligible applicants must be from communities across the United States and Canada, with three at-large members representing State Farm's national service-learning partners. Associate youth advisory board members will receive a $3,000 scholarship towards their postsecondary education at a four-year, two-year, or vocational training program. Board members will receive a $5,000 scholarship. To obtain additional information, visit: http://www.statefarmyab.com/index.php. Deadline: April 18, 2008.

PAID SUMMER INTERNSHIP
The Foster Care Alumni Association of America is seeking an Internet Marketing Intern. This position is available to an individual who will be a college sophomore, junior, or senior in the fall of 2008. The ideal candidate will be an alumnus who is a marketing major with a special interest in using the Internet and other technology and media to raise public awareness of FCAA and our mission. If you, or an alumnus you know, are interested in working at FCAA during the summer for eight weeks for a stipend of $2,500, please contact FCAA. We'll send complete details to those who are interested. Contact Julie Smith at jsmith@fostercarealumni.org for information on this position. DEADLINE: April 4

PAID SUMMER INTERNSHIPS FOR SCIENCE, TECH, ENGINEERING AND MATH STUDENTS WITH DISABILITIES
Through a program called Entrypoint!, the American Association for the Advancement of Science (AAAS) offers paid summertime internship opportunities for college students with disabilities who are pursuing degrees in science, engineering, mathematics, computer science, and some fields of business. Through partnerships with IBM, NASA, Merck, NOAA, Google, Lockheed Martin, CVS, NAVAIR and university science laboratories to meet their human resources needs, AAAS identifies and screens undergraduate and graduate students with disabilities, who are full-time and with at least a B average, to place them in paid summer internships in both the private industry and government agencies.  For more information go to  http://ehrweb.aaas.org/entrypoint/index.htm

USA TODAY, UNITED NATIONS AND BILL AND MELINDA GATES FOUNDATION INVITES HIGH SCHOOL AND COLLEGE STUDENTS TO CREATE SHORT FILMS.
USA Today, the United Nations, the Bill & Melinda Gates Foundation, and other organizations and media leaders invite young adults ages 14-24 to participate in the Film Your Issue Global Competition. The competition is designed to engage high school and college students in contributing to the public dialogue on pressing social issues using the power of the Internet and user-generated content.  To obtain additional information and an application, visit:  http://www.filmyourissue.com/index.shtml. Deadline: April 14.

DANCING WHEELS COMPANY AND SCHOOL AUDITION 
The Dancing Wheels Company is currently seeking dancers, apprentices and trainees for employment in the 2008-2009 Season. Dancing Wheels works with national and internationally acclaimed choreographers each year.  Dance positions offer full 52-week contracts, competitive rates of compensation, and an opportunity to travel throughout the country and abroad (with all expenses paid). The company is auditioning male and female sit-down (wheelchair*) dancers. Apprentices receive professional training, performance opportunities and a stipend. Please call 216.432.0306 or email Mary Verdi-Fletcher at vfletcher1@aol.com to schedule an audition. Dancing Wheels Studios are located in Cleveland, OH. More information can be found at http://www.dancingwheels.org/

GOOGLE ANNOUNCES COMPETITION AND INVITES CHILDREN TO DESIGN SPECIAL LOGO.                                                                    Google announced its "Doodle 4 Google" competition and invites K-12 students in the United States to design a Google log on the open-ended theme "What If.? The winning design will be used as Google's logo on May 22, 2008, with the artist receiving $10,000 toward his/her college education. The winning student's school will also win a $25,000 technology grant. Visit the Doodle 4 Google Web page for further information and entry guidelines. For more information, visit: http://www.google.com/doodle4google/. Deadline: March 28.

WORDGATHERING
Wordgathering is produced by members of the Inglis House Poetry Workshop a collaborative of writers with disabilities in Philadelphia, PA. The workshop promotes the work of poets with disabilities through their annual poetry contest, chapbook productions, and a conference. They are also affiliated with The Dispoet, a blog for the discussion of disability and poetry. Writing by individual members may be viewed at the workshop website, as can the winners of the 2007 Disability Poetry contest. For more information go to http://www.wordgathering.com/index.html

FIND VOLUNTEER OPPORTUNITIES IN YOUR COMMUNITY 
A valuable online tool that connects people of all ages, backgrounds and abilities to volunteer opportunities is the USA Freedom Corps volunteer search engine. This search engine can be found in the upper right-hand corner of the USA Freedom Corps homepage at http://www.usafreedomcorps.gov/. Select a category from the drop-down menu, enter your zip code or state and click the "Find Opportunities Now" button to locate hundreds of volunteer opportunities in your community. 

DisabilityInfo.gov 
Community Life News & Events  Update: Inclusive Livable Communities for People with Psychiatric Disabilities

March 17, 2008 report from the National Council on Disabilities (NCD) that looks at barriers and solutions relating to people with psychiatric disabilities fully participating in their communities. This information has recently been updated, and can be accessed by visiting this link: http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=193.

DisabilityInfo.gov 
Employment News & Events Update:  Database of Job Candidates with Disabilities

The U.S. Department of Labor has made available to employers nationwide a free database of 1,769 new job candidates with disabilities seeking work in a wide variety of fields. Hiring officials at federal agencies can access the database by going to the Workforce Recruitment Program - https://wrp.gov/LoginPre.do?method=login Web site.  Employers in the private sector and state and local government agencies should contact the Employer Assistance and Recruiting Network - http://www.earnworks.com/ (EARN) at 1-866-327-6669 to access the database.

This information has recently been updated, and can be accessed by visiting this link: http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=10.

TASH Webinar Opportunities! Register Now

Practices to Promote Inclusion for People with Autism Across the Lifespan: April 4,  21, 28 and May 5, 2008

Overview of Series
Learn about new research and information being documented on people who have the severest communication impairments and autism.  Explore ideas for addressing needs in comprehension, fluency, and vocabulary.  Get answers to several commonly held, but often erroneous assumptions about autism.  Our series will conclude with a session given by a parent and self-advocate. Hear from them about life experiences.

Register online - http://www.tash.org/dev/tashstore/ONSCategory.aspx?catid=4 or download then fax a registration form - http://www.tash.org/dev/tashcms/ewebeditpro5/upload/Autism_webinar_RegForm(1).doc  Learn more about this Webinar Series from the description - http://www.tash.org/dev/tashcms/ewebeditpro5/upload/Autism_webinar_descrip(1).doc 

National Conversation on Advising Self-Advocacy Groups

You are invited to join us in a National Conversation on Advising Self-Advocacy Groups!  Time is running out to register for our April teleconference.  The registration deadline is March 31, 2008.

The self-advocacy movement has grown stronger over the years and is here to stay.  Success, though, often depends on self-advocates getting the support they need.  This support is offered by individuals called “advisors.”  We understand that advising a self-advocacy group is not always easy.  Advisors want to be helpful.  But sometimes advisors give too much help, or too little.  And sometimes advisors don’t give the right kind of help at all.  Anybody who advises a self-advocacy group understands how rewarding it can be…  and how hard!

So let’s talk about it!  We are hosting three teleconferences on advising self-advocacy groups:  April 7, 2008 – May 5, 2008 – June 2, 2008.  All will begin at 3pm ET and run for approximately 90 minutes each.

Each teleconference will include a 60 minute panel presentation and a 30 minute Question and Answer discussion.  The panel participants will include advisors and self-advocates.  We will learn a lot from these participants.  Scroll down to read about the topics that will be discussed during each session.

The registration fee will be $25 per teleconference for ONE phone line.  If you use a speaker phone you can gather people around and listen together!  Additional lines will be $25 each.

If you register for all three teleconferences, you will pay only $20 per teleconference or $60 total!  Additional lines will also be $20 each.  So, it pays to register for all three!

To register for these teleconferences you can go to our website at www.theriotrocks.org and follow the link.

Or you can download the registration form directly here:  http://www.hsri.org/leaders/theriot/riot-teleconf-registration.pdf

For each session, the registration deadline is one week prior to the scheduled teleconference.  Don’t miss the cut-off!

Come join us for the first National Conversation on Advising Self-Advocacy Groups!  Register Now!!

The topics we will cover during each session are described below:

Teleconference #1:  The Nuts and Bolts of the Self-Advocacy Movement April 7, 2008 – 90 minutes (3pm ET) Registration Deadline:  March 31, 2008

1.      What is the self-advocacy movement?
2.      What is the self-advocate’s role in the movement?
3.      What is the advisor’s role in the movement?
4.      What are the goals?
5.      What are you proud of?
6.      What do you worry about?
7.      What help do you need to be successful?
8.      What help don’t you need to be successful?

Teleconference #2:  The Advisor – Coach, Guide or Doer? May 5, 2008 – 90 minutes (3pm ET) Registration Deadline:  April 28, 2008

1.      What task are advisors asked to do?  Styles, functions, stage of group evolution.
2.      What are the biggest lessons we have learned?
3.      What are the biggest challenges you have experienced?
4.      What do you worry about when you think about things?
5.      Relationship between person’s role as an advisor and their real life roles – conflicts?

Teleconference #3:  Growing with the Self-Advocacy Movement June 2, 2008 – 90 minutes (3pm ET) Registration Deadline:  May 26, 2008

1.      The evolving relationship between self-advocates and their advisors.
2.      What support do advisors need to do their job well?
3.      Indicators of a good advisor – what are they?

Contact us: The Riot! at HSRI, 7420 SW Bridgeport Road # 210 Portland, OR 97224, Phone: 503-924-3783 ext 10 ~ fax: 503-924-3789 ~ email: theriot@hsri.org

REFERENCE POINTS:
Conference and Workshop Updates Added to the TATRA Website


Conference and workshop updates feature NEW additions to the listing of transition related national and regional conferences maintained on PACER Center's TATRA Project web site. To see our complete calendar of events, please visit us at http://www.pacer.org/tatra/calendar.asp.

REFERENCE POINTS:
New Resource from AAIDD on Social Inclusion at Work

It is well-known that being included in social groups at work increases the job security and quality of life of people with or without disabilities. A new book titled, "More than a Paycheck: Social Inclusion at Work" by Janis Chadsey, contains step-by-step intervention strategies for teachers, vocational specialists, job coaches, and other professionals on how to socially integrate people with intellectual disabilities into employment settings. Social Inclusion at Work is published by the American Association on Intellectual and Developmental Disabilities (AAIDD) and is available for review and purchase at http://bookstore.aaidd.org/BookDetail.aspx?bid=68

REFERENCE POINTS: 
Study Records A Dramatic Increase In Individual Choice While Choosing Service Providers For People With Intellectual Disabilities Transitioning From Educational To Adult Services

In the period between 1992-2004, the number of U.S. states offering young adults with developmental disabilities the opportunity to choose their service provider increased from only 8 to 41 states, according to a study published in the December issue of the journal, Intellectual and Developmental Disabilities. While patterns of service delivery in states are well documented, most studies focus on the number of people served and service costs incurred, rather than the issue of choice of providers offered to individuals. "Who Chooses Service Providers? The Spread of Consumer Choice, 1992-2004" reveals a different lens through which to explore the changing state of developmental disability services. To read an abstract of the article, go to http://aaidd.allenpress.com/aamronline/?request=get-toc&issn=1934-9556&volume=45&issue=6. Access to full text requires a purchase at the same website.
FROM:  AAIDD

Center for Children and Families Launches New Web Site and Resources on Providing Coverage to Children and Families

http://ccf.georgetown.edu

The Center for Children and Families (CCF) at Georgetown University's Health Policy Institute has released a newly-designed and restructured Web site. View the site for information on CCF, the issues we work on and a library of our research publications. 

The new site also provides the latest data and research available on child and family health issues, but also is designed to offer practical strategies and tools for moving forward in covering America’s children and families. Go to the Resource Center http://ccf.georgetown.edu/index/resource-center for
data on uninsured children and families and their access to state health coverage programs, information on key child and family health policy issues, and strategies on how to move forward in covering more children and families. The site also includes in-depth case studies on state efforts to provide coverage to uninsured children and families and a selection of core documents on policy and research issues.

New Research by CCF
States Moving Forward on Children’s Health
A review by CCF shows that states continue to move forward to provide health coverage to uninsured children. In the last two years, 28 states and D.C. adopted initiatives to cover more children through Medicaid and SCHIP. Visit http://ccf.georgetown.edu/index/states-moving-forward to view the results.

New Issue Brief on Prescription Drugs in Medicaid
CCF has released a new brief which provides information on state and federal approaches for efficiently managing and purchasing prescription drugs in Medicaid. The report is part of a series of issue briefs for CCF’s Strengthening Medicaid project. Visit http://ccf.georgetown.edu/index/strengthening-medicaid to download the brief.

National Center for Children in Poverty - www.nccp.org
Poverty 101

Some of the most fundamental questions about poverty today are often taken for granted. But while these common questions may be easy to identify, the answers are not necessarily so. So go ahead and ask... Read Child Poverty and Family Economic Hardship: 10 Important Questions. http://www.nccp.org/faq.html

Regional Profiles of Early Childhood Policies

NCCP’s regional profiles integrate early childhood policy and demographic data for the 10 regions defined by the Department of Health and Human Services and show what states are and aren’t doing, compared to neighboring states. And the new User Guide describes more than 30 state policy choices highlighted in the profiles. View your region’s profile and the companion User Guide.- http://www.nccp.org/projects/improvingtheodds_stateprofiles.html

Iowa Family Resource Simulator

What impact do Iowa’s work supports – such as child care assistance and public health insurance – have on a family’s budget? Use the Family Resource Simulator to create your own customized graphs that illustrate how family resources and expenses change as earnings increase, taking public benefits into account. With the addition of Iowa, the Family Resource Simulator is now available for 17 states and the District of Columbia. Use the Family Resource Simulator.- http://www.nccp.org/tools/frs/

CMS Updates to Coverage Pages

CMS Updates to Coverage Pages - Wed, 19 Mar 2008 16:00:00 -0500

President George W. Bush today announced his intention to nominate individuals to serve at the National Council on Disability

The following is an excerpt from today’s White House announcement. The entire news release can be found at: http://www.whitehouse.gov/news/releases/2008/03/20080320-6.html

For Immediate Release
Office of the Press Secretary
March 20, 2008

Personnel Announcement

President George W. Bush today announced his intention to nominate individuals to serve in his Administration.

The President intends to nominate the following individuals to be Members of the National Council on Disability:

John R. Vaughn, of Florida, and upon appointment re-designate Chairperson, for the remainder of a three-year term expiring 09/17/10; Victoria Ray Carlson, of Iowa, for the remainder of a three-year term expiring 09/17/10; Chad Colley, of Florida, for the remainder of a three-year term expiring 09/17/10; Kristen Cox, of Utah, for the remainder of a three-year term expiring 09/17/09; Marvin G. Fifield, of Utah, for the remainder of a three-year term expiring 09/17/08 and an additional three-year term expiring 09/17/11; John H. Hager, of Virginia, for the remainder of a three-year term expiring 09/17/09; Lisa Mattheiss, of Tennessee, for the remainder of a three-year term expiring 09/17/10; Katherine O. McCary, of Virginia, for the remainder of a three-year term expiring 09/17/09; Ann Rader, of Virginia, for the remainder of a three-year term expiring 09/17/10; Renee L. Tyree, of Arizona, for the remainder of a three-year term expiring 09/17/09; Tony J. Williams, of Washington, for the remainder of a three-year term expiring 09/17/09.

Transition Digest #5 for 2008 (March 19, 2008)
Transitions Conference 4 - Participation: Building the Skills for Participating in the Adult World will take place on May 21 - 23, 2008 Toronto, Canada

 Highlights:

 Additional information about this not-to-be-missed conference is available on the web at http://www.bloorview.ca/education/transitionsconference.php (The conference brochure is also available on this web site)

For more information, contact: Kimberlea Jones-Galley, Transitions Conference Chairperson, Bloorview Kids Rehab, 150 Kilgour Road, Toronto, Ontario   M4G 1R8, 416-425-6220 Ext. 3645, 1-800-363-2440 Ext. 3645, kgalley@bloorview.ca

Care Notebook

From Amy Kephart, MPH, CHES, Program Coordinator of Technical Assistance, Division of Children with Special Needs, National Center of Medical Home Initiatives for Children with Special Needs , American Academy of Pediatrics

Build your Own Care Notebook Available Now at the National Center of Medical Home Initiatives for Children with Special Needs Web Site

Dr. Charles Onufer, Director, Division of Specialized Care for Children at the University of Illinois at Chicago and his Title V CSHCN staff, created a web site called “Build Your Own Care Notebook”. They are working with staff from the National Center of Medical Home Initiatives for Children with Special Needs. This web site is designed to assist families to build their own care notebooks for their own children with special needs. The web site allows parents to select different versions of care notebooks and put them together to build their own customized care notebook.

Dr. Onufer took 20 complete care notebooks and developed a template consisting of 6 major sections with their corresponding subsections. For each of these subsections, up to 20 versions of that subsection was created in MS Word and Adobe PDF formats.  A parent then has the capability to review these different versions of the subsections that they would like to include in their child’s care notebook, and download those Word or PDF files to their computer. 

 The next step was creating an online tutorial for parents to guide them in "how to" use the online care notebook for their child or patient. A field test of the tutorial was held for parents and health care professionals February 5, 2008 at the Illinois Center for Rehab and Education. Dr. Onufer and his staff are revising the tutorial based on comments from the field test and will work with National Center Staff on uploading the tutorial. 

Currently, the care notebook web site is live and is located at: http://www.medicalhomeinfo.org/tools/care_notebook.html. Web site:  http://www.medicalhomeinfo.org

One-Stop Toolkit Resources of the Week Technical Assistance Project
2008 Red Book:  A Summary Guide to Employment Supports for Individuals with Disabilities Under the Social Security Disability Insurance and Supplemental Security Income Programs

Social Security Administration -http://www.socialsecurity.gov/redbook/

One of the Social Security Administration's (SSA) highest priorities is to support the efforts of disabled beneficiaries who want to work by developing policies and services to help them reach their employment goal. To that end, the Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs include a number of employment support provisions commonly referred to as work incentives.

The Red Book is a general reference tool designed to provide a working knowledge of these provisions. The Red Book is written primarily for educators, advocates, rehabilitation professionals, and counselors who serve individuals with disabilities. SSA also expects that applicants and beneficiaries will use it as a self-help guide.

Access the URL to download the HTML, PDF versions of the Red Book in both English and Spanish.

What’s New for 2008
SSA increased the Substantial Gainful Activity (SGA) amount for individuals with disabilities, other than blindness, from $900 to $940 for 2008.

DBTAC Webcast:  ADA Transportation: General Rules Applying to All Modes of Transportation - Focus on Stop Announcements and Equipment Maintenance” Part IV of a V Part Series

Date and Time:  Wednesday, March 26, 2008 – 3:00 PM Eastern Daylight Time - http://www.ilru.org/html/training/webcasts/calendar.html

This webcast is the fourth in a series of five once-a-month webcasts on ADA Transportation featuring Marilyn Golden of the Disability Rights Education and Defense Fund (DREDF).  This webcast will focus on general rules that apply across the board to many modes of transportation under the ADA. This covers subjects such as equipment maintenance, lift and securement use, service animals, the ADA’s prohibitions against retaliation and harassment, and other miscellaneous provisions. This webcast will focus, in particular, on some new best practices examples related to equipment maintenance and stop announcements.

About the Presenter
Marilyn Golden is a Policy Analyst at the Disability Rights Education and Defense Fund (DREDF), our nation's foremost national law and policy center on disability civil rights, with offices in Berkeley, California and Washington, D.C. She has been closely involved with the Americans with Disabilities Act throughout all the stages of its proposal and passage and now during its implementation. A highly lauded ADA trainer, she has directed and led numerous in-depth programs on the ADA which have given thousands of people comprehensive knowledge on how to make this law a reality. She is the principal author of the DREDF publication The ADA, an Implementation Guide (the "Bluebook"), DREDF's highly-respected ADA curriculum.

Since the ADA's passage, Ms. Golden has continued to play a key role in policy development on a federal level in the areas of transportation and architectural barriers. She was appointed by the President to the U.S. Architectural and Transportation Barriers Compliance Board (also known as the Access Board) in 1996 and served on the Access Board until 2005 as a very strong and effective advocate for the interests of people with disabilities. She has also played a key role as a national transportation advocate, and has led the struggle for many of the policy victories during and since the ADA to provide better public transportation for people with disabilities. She has also authored or coordinated many ADA-related transportation papers and projects, and led numerous in-depth training programs on ADA transportation.

In 2005, the National Council on Disability published a major paper on current major disability transportation policy issues co-authored by Ms. Golden, "The Current State of Transportation For People with Disabilities in the U.S".

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For technical assistance, please check out the FAQs (frequently asked questions) at:
http://www.ilru.org/html/training/webcasts/FAQ.html or contact a webcast team member at webcast@ilru.org or 713.520.0232 (v/tty).

This webcast is supported through the DBTAC - Southwest ADA Center, a project of ILRU.  Southwest ADA Center (http://www.SouthwestADA.org) is one of ten Disability and Business Technical Assistance Centers (DBTACs) funded by the National Institute on Disability and Rehabilitation Research (NIDRR) to provide training, technical assistance and materials dissemination on the ADA and other disability-related laws. NIDRR is part of the U.S. Department of Education.

Learning About Invisible Disabilities

http://www.ncsd.org/Newsletter/InvisibleDisabilities.pdf

A presentation created for the National Council for Support of Disability Issues (NCSD)
Written by Maggie Koster
http://www.ncsd.org/

This presentation—in PDF format--includes great information for anyone who is interested in learning more about and understanding non-visible disabilities.

To learn more about how to accommodate non-visible disabilities, access the Job Accommodation Network’s Searchable Online Accommodation Resource at http://www.jan.wvu.edu/soar/disabilities.html.

Until Next week

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